My Story

Hey! My name is Megan and I’m turning 16 this month! My story started a little over three years ago now. I am a competitive swimmer and it use to be my whole life. At the end of my 2016 summer season, I started having seizures (at the time I didn’t know they were seizures, I just thought I was being weird) during my practices. I would pause in the middle of the pool, randomly switch stokes, or in so very awkward cases, I would just stand and stare when it was my turn to go (my teammates would be screaming at me). I ignored it for a few weeks until things began to progress. I started to drop/throw things. There was one instance where I was plating up my favorite Mac and cheese and I threw 3 plates on the floor!!! They continued to get worse until I would fall over.

Eventually my parents started to notice and we saw my doctor to talk to him about it. The problem was solved. I had, and I quote, “silly teenager syndrome”. This didn’t sit very well with us and after a few hundred more rough seizures, silly teenager wasn’t enough. So I underwent the usual testing and was diagnosed with JME (juvenile myoclonic epilepsy) and absence seizures.

Since then, everything has kind of just been a blur. I’ve tried 9 medications, ketogenic diet, and VNS therapy. It’s been really hard to stay positive but I’m trying my best. Although this has most definitely not been fun, and I’m still not seizure free, I wouldn’t change a thing. I’ve come to realize how misunderstood epilepsy is and I’ve met so many people who are ashamed of their epilepsy. My goal is to make sure nobody ever feels the need to hide their seizures. I spend as much time as possible advocating and raising awareness. I hope I’m making a difference. Epilepsy is nothing to be ashamed of and there are people just like you out there. Stay strong my loves, everything happens for a reason.

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